Welcome to USA IIH

On our USA IIH Blog, we aim to provide patients with the latest up to date knowledge regarding IIH! This includes information on current and new treatments, long-term outcomes with this disease, new insights into the causes of IIH, management of IIH, and more. 

Specifically, we will be providing blog updates after the North American Neuro-Ophthalmology Society Conference. This is an organization for neuro-ophthalmologists and scientists where IIH is thoroughly discussed. As one of the most common seen in neuro-ophthalmology, IIH is highlighted during this meeting and new insights shared. We want to share these insights with you too!

In the future, we hope to expand USA IIH by sharing ways patients and family members can participate in IIH research.

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We aim to give you approximately two blog post updates per year. One at the end of March after the North American Neuro-Ophthalmology meeting and another six months later in September. 
USA IIH

USA IIH

Recent Posts

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New IIH Scientific Updates

Check out some new IIH scientific insights in this video lecture! This specifically is our founder's thesis defense, where she highlights much of the research she has done on IIH within the last 4 ...
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What is Fulminant IIH & What are We Doing to Preserve Vision?

This is part two of updates regarding the North American Neuro-Ophthalmology Meeting, or NANOS. Not only was IIH thoroughly covered in this meeting, but the rare presentation of fulminant IIH made ...
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Clinical Trials and Treatments for IIH

The North American Neuro-Ophthalmology (or NANOS) organization hosts a meeting every year for neuro-ophthalmologist to showcase care updates, advances in research, and more. This year NANOS ...
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About USA IIH

Hello and Welcome to USA IIH! I created this space to arm you -the patients, family, and friends of those with IIH – with the latest information about research updates regarding IIH. Currently, we ...
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Disclaimer: This website does not provide medical advice. It is meant to be informative to IIH patients, their families, friends, and caretakers. Jacqueline Shaia is not a clinician but a scientist whose research and activities are meant to provide information to the scientific community, the community of caretaker, the public, and to those who suffer from IIH.