IIH, also known as pseudotumor cerebri, or benign intracranial hypertension is a disease that mainly affects women of a reproductive age. Typically thought of as rare, this is an increasing condition in the United States.
Patients with this condition typically suffer from severe migraine pain, vision loss, ringing in the ears, brain fog, and more. Unfortunately this is a life-long condition with no known cause or cure.
But that's where we come in! USA IIH is here to arm you with information about the latest and greatest scientific advances for IIH! Because there are researchers out there fighting to understand this condition, we believe through science we will be able to improve patient live and we want to give you every opportunity to receive information to best understand your disease.
Disclaimer: This website does not provide medical advice. It is meant to be informative to IIH patients, their families, friends, and caretakers. Jacqueline Shaia is not a clinician but a scientist whose research and activities are meant to provide information to the scientific community, the community of caretaker, the public, and to those who suffer from IIH.